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I am very grateful to all those who gave their time and efforts to support the initiative.
Video of training currently to be uploaded.
Positive Behavioural Support Training given by Andy Fenwick, a trainer introduced by the UK charity, the Challenging Behaviour Foundation.
Клацніть тут, щоб переглянути відео тренінгу з підтримки позитивної поведінки та тест.
Щелкните здесь, чтобы перейти к видеороликам об обучении и тесте поддержки позитивного поведения.
Please click here for a link to videos of the one day Positive Behavioural Support training and the test.
The Challenging Behaviour Organization recommended Andy Fenwick as a trainer to give a presentation in Kiev in May 2017. The Institute for Social and Economic Research (ISER) kindly provided the venue and filmed the session.
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A follow on presentation on Positive Behavioural Support was led by the All-Ukrainian NGO Coalition for the Protection of the Rights of Persons with Disabilities due to Intellectual Disabilities is a network of 118 NGOs and support services on 17 May.
Follow-on training session on 17 May 2017 organized by Ukrainian NGOs.
Working groups
To prepare for the response to the International Psychiatric Conference in Kiev in 2017, to which David had been invited, intensive working group meetings were organized at ISER, who kindly offered their premises.
David met with the Raisa Kravchenko from the All-Ukrainian NGO Coalition for Persons with Intellectual Disability with a brain storming session to discuss the best approach to improving the situation in Ukraine.
The working groups were attended by charities from Ukraine as well as some representatives from Ukrainian MPs David had been in contact with.
At the same time as the working groups, David travelled to Vinnytsia Oblast to begin a pilot project on antipsychotic reduction in one of the adult institutions there. The last visit to this institution was in November 2021.
Above is the document the working group submitted as a position statement to senior government officials on the problem of over medication in Ukraine.
Response from O.O. Petrenko (re National Academy of Medical Sciences of Ukraine, in accordance with the mandate of the Cabinet of Ministers of Ukraine)
This is the response from Nikolai Kuleba, the President of Ukraine's representative on children's human rights
This is the presentation put together after the brainstorming session in the first week of my visit to Ukraine
This is the brainstorming presentation that was put together with the All-Ukrainian NGO Coalition that lead to the formation of the working groups.
Conference calls
In the second half of 2016, David organized several international conference calls between individuals in Soviet Union countries and specialists in the UK. Individuals from Ukraine, Russia, the Baltic states and some specialists from the Caucuses participated. The Canadian Foundation for Healthcare Improvement was also willing to participate, but given their work was focused on elderly people, priority was given towards sharing best practices towards reducing drugging (e.g., antipsychotics) for younger people diagnosed with learning disabilities and those in psychoneurological institutions.
In February 2017 David was invited to the International Psychiatric Conference in Kiev. He set up SDVI in the UK and travelled to Ukraine with a view to getting a working group together.
Key quotations from conference calls
Start of project
David Powell had first experience volunteering in a psychoneurological institution in a remote area of Russia in 2007. He observed that children who misbehaved were threatened with and sometimes given injections by the “врач” (‘doctor’).
In June 2016, David had some free time before being admitted to business school and decided to reach out to international charities with a view to starting a project to reduce the amount of drugging that was going on in such institutions.
A representative from MENCAP wrote to him about the UK STOMPLD initiative (https://www.england.nhs.uk/learning-disabilities/improving-health/stomp/). This was an initiative aimed at reducing the amount of medication of individuals diagnosed with learning disabilities. Much of the momentum behind this initiative came from Vivien Cooper OBE, who had set up the Challenging Behaviour Foundation, based on her hard work for over a decade, starting with information sheets about how to manage challenging behaviour without the use of medication.
David was aware of Parliamentary initiatives in the UK and across the Atlantic (e.g., the Canadian Foundation for Healthcare Improvement antipsychotic reduction program) aimed at reducing psychiatric drugging. Given both children and adults are in psychoneurological in former Soviet Union countries, he decided to start a project to spread such best practices across the world with a view to the reduction of drugging in former Soviet Union countries.
After being offered informational support from several individuals in the UK, he began by writing presentations to charities, psychologists, psychiatrists, MPs and government officials in both countries with presentations he put together in Russian and Ukrainian.
Over 800 postal letters (many of them international) and 8000 personalized emails were sent over the course of this project. There were many meetings that are not recorded on this website and David (contact.sdvi.su[a]gmail.com) can provide you with more details (including the details of the meetings with the Ukrainian Ministry of Health) and in other former Soviet Union countries.
For the purposes of simplicity, this new website has been put up to describe the four most intense periods of work in Ukraine.